Yesterday on my Facebook TM Folks group, I had a new member join us. Her name is Betty Thomson. Her husband has TM.
They started an organization called There is Always HOPE Events, where they auction off various crafts that they make and that others make.
She has offered to donate one of their jeweled trees that they make, to use for a raffle here on the IDC. I also, in return am going to donate to them, one of my wood carvings for them to use in one of their events.
The purpose of their events is to raise money for various causes having to do with various disabilities.
Here is a link to their Facebook page and I encourage you to stop over there and check it out….
I want to make an announcement….
In coordination between the International Disability Coalition (IDC) http://disabilitycoalition.org/ and the TM Network http://transversemyelitis.ning.com/
I have been talking and working with Scott Pruitt and we are going to roll out a program to locate used or new medical equipment (wheelchairs, walkers, canes etc…)
and get that equipment to people that are in need of it.
We are looking for any donations that might be available from anyone, and we are also working on contacting medical supply companies and manufacturers.
First…we are looking for some help in developing a name for this program….and then we are looking for anyone that might have something to donate and then we are looking for recipients of the equipment…
If anyone has a suggestion for the name of the program, let us know…
I hope to see this program become successful…
A friend and fellow TM’r, who is a psychologist, practicing in Wichita, Kansas…
She recently has started publishing a paper with information on various things…
This article touches on the Online Support Resources for “Orphan” diseases.
I hope you enjoy it…
Over the last couple of years, I have been writing to my local newspaper, trying to get them to do an article, not so much about me, but about TM and how it can affect people.
Well, the paper recently started a section called “A Day In The Life” where they highlight local people that are dealing with “issues”.
I wrote to the publisher of that column and I actually got an answer back from her….
and after a few e-mails back and forth, with me answering some questions for her and sending her some pictures….
The article came out today… YAY…!! Finally, some local awareness about TM…
Canton Rep. A Day In The Life Kevin Weilacher
I appreciate everyone that stops by our International Disability Coalition website and I also want you to know, that any donations we receive, will go towards the research of a cure for TM, and on occasion we will try to assist a TM’r in need.
One of our TM members…..was having some trouble coming up with the money to put together a proper burial for her son that has just passed away due to complications from Diabetes….
The IDC was able to send her a small check that helped her….
and she sent this wonderful note thanking us….
“Thank you for the check you sent. It really helped. With the aid of my church Chris was buried, which is what he wanted. My other two sons have taken his death very hard. I miss him but I know he is in heaven and happy now. No more checking his blood and giving shots. He is whole. I never expected help from someone I have never met. Thank you for your kindness.”
That makes everything we do….so worthwhile…